Albinism is a rare, non-contagious, genetically inherited difference present at birth. In almost all types of albinism, both parents must carry the gene for it to be passed on, even if they do not have albinism themselves. The condition is found in both sexes regardless of ethnicity and in all countries of the world. Albinism results in a lack of pigmentation (melanin) in the hair, skin and eyes, causing vulnerability to the sun and bright light. As a result, almost all people with albinism are visually impaired and are prone to developing skin cancer. There is no cure for the absence of melanin that is central to albinism.
.
INCLUSION IS STRENGTH
The theme builds on from last years’ theme of ensuring the inclusion of the voices of persons with albinism in all sectors of life. It emphasizes the importance of inclusion of a diversity of groups from both within and outside the albinism community. Specifically, it highlights the importance and benefits of:
Including a broad spectrum of persons with albinism in albinism-related discussions, including youth, women, children, older persons, LGBTQ+ and persons with albinism of all races and ethnic backgrounds;
Collaborating and embracing albinism within the disability movement, and in other sectors where decisions affect persons with albinism; and.
Seeking synergies with human rights groups and other groups from outside the albinism movement.